By Yamila García

I want to bend over, curl up and cry. But I can not. That is not right. I don’t want anyone to feel bad or guilty for me. I can’t stand the noises anymore. People move too much. No, it’s not too much, it’s normal. It’s just too much for me. My heart is going too fast, I feel it strong in my chest. I want to teleport home. I want to close my eyes and be there automatically. I don’t want to feel anything anymore. 1 1 2 3 5 8 13 21 34 55 89… Counting still works. Breathe, breathe and don’t think. I kept counting. 1 1 2 3 5 8 13 21 34 55 89… come on, keep going… 144 233 377… yeah, I can handle it now… ok, I’m breathing slower, that’s a good sign. Now act normal. My face sure looks angry. Try to talk like this so no one notices that something is happening. But I do not want to. Better stay like this just in case it happens again. Little by little… 1 1 2 3 5 8 13 21 34 55 89 144… Come on, keep breathing. Surely people notice my breathing… breathe slower. My heart rate is going down a little. I know it’s going to happen, it always happens… I just don’t have to think too much. Just breathe and count… Now maybe I can talk. Try to talk.

Something like that feels like being overwhelmed for me, after enduring stimuli until I reach the limit. It’s not as easy as: “don’t pay attention to what’s happening.” Many of the things that surround us are perceived in different ways and what for some is nothing, for others is overwhelming. That’s why I write this, because it’s real for me. Because after having gone through a challenging time, if you put me in front of various stimuli, chances are I will feel that way. I know that what I write exposes me and shows my most fragile side, but I don’t care, because just as I know myself, I know that I have been able to handle things that others don’t have to face. I know that I have done a lot with more difficulties than many people and I know that the more we share how we neurodivergents perceive the world, the more education there will be about it so that we can really have a more inclusive world for us.

By Yamila García

Learning to mask helps us survive. Masking helps us hide who we truly are from the world, showing them what they want to see. Since we were kids, many of us did it naturally, often without even knowing why we did it. Over time, we learn that, no matter how different we are from everyone else, we can always put on a mask to hide who we are and how we feel. However, after many years of relying on these “masks,” we might start thinking that simply pretending can handle everything that comes our way.

We might think we’re doing fine, that people don’t notice our differences, that we’re good at masking. But we can’t avoid everything that’s happening inside us. Masking just makes us keep going and seem like everything’s okay, but deep down, there’s a fire burning. Gradually, masking gets tougher and less convincing. We keep holding on, resisting, and doing our best, but it stops working, and we’re left with no energy. Pretending has taken everything from us. We end up utterly exhausted, unable to function as we normally do.

Masking “protects” us from the outside but burns us alive inside. It leaves us alone, without the strength to do anything more than hide in some corner, some hole in our house with little light, no noise and that is small enough to feel that at least we have some control. I know many neurodivergents are trying hard not to mask now, and I totally admire them. But I never learned how to live without it. I wouldn’t even know where to start. But I think I need to unlearn this harmful habit that denies my true self and doesn’t let me take care of my needs. It leads me to drain myself, isolate myself, and forget to care for myself.

By Yamila García

All humans are full of contradictions, yet those of neurodivergents seem to be questioned. However, all these contradictions are perfectly fine. We don’t need to justify them; they are an integral part of our humanity. Trying to understand them is also not necessary, but sometimes it can help us better deal with them. Contradictions arise from many factors, one of which is the interplay between our essential nature and the experiences and adaptations we undergo throughout our lives. Nobody is 100% logical. We are humans, not robots. Therefore, we’ll always have clashing views and feelings.

I have many contradictions myself. For example, noise makes me sick; it distracts me and generates discomfort. However, I grew up in a big city, and today, being far from it, noise is also comforting in some way, reminding me of “home.” Brightness usually hurts me. Going out in the morning and seeing sunlight is painful because of my sensitivity to light. However, I find it comforting to feel that warmth on my skin. Like many neurodivergents, I also have soothing behaviors; I rub certain types of fabrics, which helps me focus and calm down. But sometimes, I do it so much that my hands hurt, and I get cramps. Being around many people makes me anxious, but at the same time, if I don’t see people, I feel isolated. As you can see, even in simple things, we can identify contradictions, but it’s important to know that we don’t have to be any other way. These contradictions are acceptable, and there doesn’t need to be a logical explanation for them.

Many times, when we ask for accommodations, people may say, ‘If you can do this, how come you can’t do that?’ For many, those two things being compared may seem the same. But for neurodivergents, the scenarios and the environment in which we have to function have a significant impact on what we can do and how we can do it, for various reasons. And yes, we also have our contradictions, just like everyone else. People often look for a ‘logical’ explanation for how we perceive the world and operate. However, it’s paradoxical to ask someone with a different view and logic to explain their perspective, knowing that it differs from ours. But also, it’s important to understand that such logic is not always necessary.

By Yamila García

Before coming to the US, I tried to do several things in many stages of my life and none of them worked out. I was frustrated but somehow accepted that my life was going to be like that. I never stopped trying though. However, when I came here, things changed. I had some tough moments, of course. But everything I was trying turned out well, and that made me scared. I was too used to dealing with adversity but never learned to deal with any kind of success. The fact that everything I was doing was going well scared me a lot, not because I was afraid that things would “go back to normal,” but because I just didn’t know how to go through it or even enjoy it.

I have wondered so many times why this happened and if the place had something to do with it. It was even funny to see how things never worked out for me. I contemplated several possible reasons, including being in survival mode or simply having fewer distractions. However, time went by and most of those options stopped making sense in my current reality. So, it was then that I realized that the only thing I had here that I never had in my country was my diagnosis as neurodivergent. I always felt different, I always knew that my differences with others went beyond the differences that are acceptable for society. However, I never had a full understanding of who I was or how and why I worked the way I did.

My journey in this country has been full of learning. I learned a lot about myself. I learned how to prioritize myself and my needs, how to better handle my struggles, and how to enhance my abilities, but most importantly, I learned how to respect my essence. I don’t force myself to do things that harm me anymore. Yes, I challenge myself as a way to keep learning and growing, but I am kind to myself. This is why I can finally say that I am proud of the person I am. Needless to say, I couldn’t have gotten to this point without knowing who I really am. Obviously, I’ve been neurodivergent my whole life but, as I didn’t know it, I was expecting myself to act as if I wasn’t. As a consequence, for years my focus and energy have been put into trying to act “normal” or do what others do, while it should have been put into whatever I was trying to do at the moment. I’m still learning how to change the focus from masking to what really matters, and so far I’ve only seen improvements in my life.

By Yamila García

A few days ago, I was registering for a new service that I wanted to access when something happened that left me wondering. The person who was registering me told me that I must access the website to complete the registration process. He told me the website, and I understood while he was saying it, but as soon as he stopped and I had to enter it on my cellphone, I couldn’t remember it. So I asked him to please repeat it to me, and while he said it, I repeated it in my head. But again, as soon as he finished saying it, I couldn’t manage to write it on my cellphone. I tried one more time, and while he said it, I simultaneously completed the sentence in my head. But once again, it was as if I were looking for something in my memory that I knew was there, and that I repeated 1 second ago, but could not access that space at the moment. The person who was with me at that moment helped me to complete the process because that could have been an endless conversation.

This has happened to me many times. I know that if I give it a minute, maybe I will be able to access it. But at the moment, I end up requiring some assistance. There is somehow a “space” between the moment in which I received information verbally and the moment in which I can use that information. I cannot access it unless I withdraw from the situation and think about it alone, without any social interaction. This happens with lectures at school too, and with regular conversations, although I learned what to say and how to act to pretend I’m following the conversation, so people don’t realize it. So this makes me think about why it is assumed that oral communication is preferred or most effective for everyone. How difficult would it be to have something written with basic instructions such as web pages, phone numbers, addresses, etc.?

Likewise, at school many times those of us who have these auditory processing difficulties find it difficult to take advantage of the lectures. The classrooms are usually very large, there are many background noises and visual stimuli that, in addition to these problems, make it even more difficult for us to concentrate on what we are listening to. However, it would help us a lot to have the recordings of the classes, or the professors’ notes at least to be able to cover what we miss at the moment. That’s why I truly appreciate the professors who see beyond their own reality and provide videos, notes, and more, recognizing that not all of us learn in the same way.

By Yamila García

My silence may seem empty, but it’s full of questions. My mom always says that when I started asking “Why?” I never stopped. There’s been a barrier between what I think and what I can say my whole life, and that makes me seem like a very different person from who I actually am. I always have questions, but very few times I am able to put them into words. I try to understand the reason for these barriers, and the first thing that comes to my mind is that I am aware that I communicate differently from the majority. Whether it’s with the choice of words I use, the intonation, or the content of what I say. In addition, I also know that I see things that others do not see and that things which are obvious to others I do not see.

The pile of questions in my head continues to grow with the passing of the years. It mutates, nourishes me with new perspectives, and pushes me to answer several by myself to satisfy my curiosity. In that search, I found a surprise that gave rise to a new (or perhaps very old) passion: Philosophy. My questions were never just based on a result or a simple explanation. I always wanted to know the essence of everything. Watching someone do something not only made me curious to know “why is this person doing this?” but also made me feel the need to know: Why do they think this way? How did they grow? In what values would they have developed to think or act in this way? How does this fact influence the life of this person? And those of those around them? My questions are deep. They not only try to understand how the people around me work but also those in the rest of the world and even existence itself. They aim to analyze and understand everything, almost like an unconscious attempt to do philosophy. I have done this since I was little; my mind never shuts up, and when I discovered what philosophy was all about, I was dazzled! I felt like it was a kind of math without numbers, and that feels like magic for me!

It’s crazy to think that I’ve been trying to avoid the humanities since I was “aware” that letters and history were not my thing. I’ve missed out on a lot of things by pigeonholing myself into the stereotype that many thought of me. I don’t have the power to change what others think of me. However, changing the way I see and talk to myself is something I can and should do. Now I know that there is a lot that I can discover, enjoy, and learn by doing so.

By Yamila García

Before coming to the United States, I had never moved in my life. The impact of such a change on me was immense. Moving to another hemisphere, with a different language and such a distinct culture, was a shock. I know that for many, it would be the same, but I also realize that my way of perceiving the world made it even more intense than it might be for others. Not only logical aspects, like adapting to the new language or customs, affected me, but everything sensory. The scents of different seasons (especially fall), the smells of greenery, the flavors of unfamiliar food, and attempting to comprehend the background voices unsuccessfully tormented me daily for a long time, leading to many hours-long headaches.

Many times, I simply wished to hide in a hole and stop feeling everything that overwhelmed me. I clung to the items I had brought from my country in an attempt to endure everything that this significant change was causing me. However, it was this very process that brought the most significant learning to my life. Chaos and crises demand action and oblige us to adapt in some way or another. It can be painful, overwhelming, and frustrating, but when we get out of it, makes us stronger individuals. We are enriched by the battles we fought and conquered, once again overcoming one of the most profound fears that several neurodivergent individuals face: change.

Sticking to a routine serves as a lifeline to alleviate some discomfort from our lives, but discomfort often leads to learning and growth. I’m not suggesting that we should all live in discomfort each day or merely endure whatever comes our way. What I mean is that when something is inevitable, we might approach the challenge with greater appreciation. Acknowledging that it won’t be easy but can significantly contribute to our personal growth. Embracing challenges permits us to dedicate 100% of our efforts to overcome them. On the other hand, when we resist the inevitable, our minds expend excessive energy fighting it, and the fear of confronting it becomes more overwhelming than the actual task itself.

By Yamila García

When a professor asks me something in class, I usually say, “I don’t know.” But the truth is, I don’t remember at the moment, maybe because I panic when I have to talk in front of many people, and so my brain is busy trying to speak properly and not sound too weird. I want to get out of the “situation” as soon as possible. Saying “I don’t know” is like an ostrich hiding its head in the ground. I do my best in my classes to participate in class and lab activities, but when I am asked to work on something that was explained just a few minutes before, I can’t do it. I don’t process things that fast in the classroom, and that is mostly because of the many stimuli I receive in the classroom. I hear all the noises at the same level, so I notice how my focus is interrupted by my classmates commenting on something, passing pages on their manuals, typing, people walking in the hallways, etc.

However, I remember a lot of things when I listen to someone speak, but in a more neurodivergent-friendly environment. I even used to record myself reading because I memorized more easily by listening than by reading. I like reading, but if it is not something I can visualize or draw in my mind while I read it, I get lost so quickly. I can keep going through the text, maybe, but I have no idea of what what I’m reading means. That is why many times when I have to work on exercises from school that have very long instructions, I find it really hard to even start them because I am unable to read the whole thing. I read the first sentence, move to the next one, and I ask myself: what was the previous sentence about? And then go back to the first one and could repeat this for hours. I say the words in my mind but do not connect their meanings somehow. I can “read,” and do it out loud, and still don’t get any idea of what I read. On the contrary, when I read a story, I paint all the descriptions in my mind with so much detail that feels like a movie, and that makes focusing so much easier.

I never heard of simplified instructions as an accommodation, but I could make good use of them. There is no way that knowing how hard it is for me to focus on long texts (no descriptive texts) they expect me to work on a simple exercise but give me 3 pages of instructions including the history of a certain number or symbol, and more irrelevant (to me) information that we do not really need to be able to demonstrate that we know what we have to know. Giving the possibility of choosing between simplified or detailed instructions could improve how many people work at school.

In the year 2012, when many believed the then-interpretation of the Mayan calendars’ abrupt end date to be a prediction of the end of times, I was finally diagnosed, officially, with Attention Deficit Hyperactivity Disorder. My family learned that teachers are legally not allowed to tell parents to request an educational evaluation. It took my family until third grade when they noticed that I seldom had birthday party or playdate invitations to realize that something was amiss and they demanded an educational evaluation that resulted with ADHD..

I was eight years old at the time, attending Booth Hill Elementary School as a third-grader. About halfway through the school year, after consulting numerous medical journals, reports, and studies on the positive results effected by the combination of ADHD medication with talk therapy rather than talk therapy alone on children with this diagnosis, my mother, a family physician, decided that she would go against her Ecuadorian culture upbringing (despite being a first generation American) and let me begin ADHD meds in addition to talk therapy as treatment for ADHD.

According to the DSM ADHD is present when the following criteria are met:

“People with ADHD show a persistent pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning and/or development:

• Inattention: Six or more symptoms of inattention for children up to age 16 years, or five or more for adolescents age 17 years and older and adults; symptoms of inattention have been present for at least 6 months, and they are inappropriate for developmental level:
  • Often fails to give close attention to details or makes careless mistakes in schoolwork, at work, or with other activities.
  • Often has trouble holding attention on tasks or play activities.
  • Often does not seem to listen when spoken to directly.
  • Often does not follow through on instructions and fails to finish schoolwork, chores, or duties in the workplace (e.g., loses focus, side-tracked).
  • Often has trouble organizing tasks and activities.
  • Often avoids, dislikes, or is reluctant to do tasks that require mental effort over a long period of time (such as schoolwork or homework).
  • Often loses things necessary for tasks and activities (e.g. school materials, pencils, books, tools, wallets, keys, paperwork, eyeglasses, mobile telephones).
  • Is often easily distracted
  • Is often forgetful in daily activities.

• Hyperactivity and Impulsivity: Six or more symptoms of hyperactivity-impulsivity for children up to age 16 years, or five or more for adolescents age 17 years and older and adults; symptoms of hyperactivity-impulsivity have been present for at least 6 months to the extent that is disruptive and inappropriate for the person’s developmental level:

• • Often fidgets with or taps hands or feet, or squirms in seat.
  • Often leaves seat in situations when remaining seated is expected.
  • Often runs about or climbs in situations where it is not appropriate (adolescents or adults may be limited to feeling restless).
  • Often unable to play or take part in leisure activities quietly.
  • Is often “on the go” acting as if “driven by a motor”.
  • Often talks excessively.
  • Often blurts out an answer before a question has been completed.
  • Often has trouble waiting their turn.
  • Often interrupts or intrudes on others (e.g., butts into conversations or games)

In addition, the following conditions must be met:

• Several inattentive or hyperactive-impulsive symptoms were present before age 12 years.
• Several symptoms are present in two or more settings, (such as at home, school or work; with friends or relatives; in other activities).
• There is clear evidence that the symptoms interfere with, or reduce the quality of, social, school, or work functioning.
• The symptoms are not better explained by another mental disorder (such as a mood disorder, anxiety disorder, dissociative disorder, or personality disorder). The symptoms do not happen only during the course of schizophrenia or another psychotic disorder.

Based on the types of symptoms, three kinds (presentations) of ADHD can occur:

• Combined Presentation: if enough symptoms of both criteria inattention and hyperactivity-impulsivity were present for the past 6 months
• Predominantly Inattentive Presentation: if enough symptoms of inattention, but not hyperactivity-impulsivity, were present for the past six months
• Predominantly Hyperactive-Impulsive Presentation: if enough symptoms of hyperactivity-impulsivity, but not inattention, were present for the past six months.

Because symptoms can change over time, the presentation may change over time as well.” (1)(3)

Let me describe what schoolwork was like before beginning medications and still is once my meds wear off: absolute torture! I’ve heard ADHD described as running a marathon with boulders in your pockets. Of course you can still manage to pull off completion of the task but every step is so much harder than it has to be. For example, I remember so many nights where my Mom would lovingly sit next to me trying to keep me focused on the task at hand since she realized the moment she left I would begin to go down the rabbit hole of learning interesting science facts on the internet with no end in sight until her return. Those assignments seemed to not get completed until right before midnight. Many times, despite the imminent due date, such as the next day, even after all the work and extra time put in and sleep lost by both of us; I would invariably seem to purposely sabotage myself and forget to turn in the assignment costing me precious points, resulting in a lower grade. She always emphasized that she was certain I was a great writer; it’s just that it always took hours to collect my thoughts enough to get me to even start writing. Once I began, it would take some time to get me to stop. I would almost always completely forget to bring home assignments and when I did complete them, I would often forget to turn them in.. Everything took hours for me, all the activities of daily living such as bathing, dressing and even eating. One slice of pizza would take hours to eat and I love pizza! But I would get so distracted that I would have to heat it up in the microwave at least 2-3 times and so by the time I got around to earning it it would taste like cardboard.

Test-taking was the worst! It would take me a good 25-30 min just to settle in to start my test either because of anxiety or distractions from the nervous jitter of the other children or from the repetitive tapping of my own foot on the floor. By the time I could finally concentrate on what the first question was asking me, over half the testing time had gone by. Invariably, most of the questions were left unanswered. In the rare instance, I would finish a test in time, I would find out much too late (when the teacher returned my test with not an A) that there was a whole back of the test page I failed to answer because I never looked!

Once I began ADHD medication, it took a while to figure out which one would work for me. My fourth-grade teacher, Mrs. Devine noticed something was different right away saying “Michael has always been very polite and extremely intelligent but now it seems someone has taken his cover off and he shines more brightly.” Once accommodations began, my family still had to deal with more than one teacher who felt as if  I’d been given an unfair advantage. They did not realize that what these accommodations were doing was leveling the playing field. I’ve heard ADHD described as running a marathon with boulders in your pockets. I completely agree.

The Americans with Disability Act was passed in 1990 and is a Civil Rights Law that prohibits discrimination based on disability. (2)  Thanks to this law, there are accommodations offered to children with  neurodiversity from elementary to high school and even college years.  I have been very impressed with the University of Connecticut’s Center for Students with Disabilities and the provision of continuing educational accommodations from secondary school to college. This provision is invaluable to me as a neurodiverse student since it continues to help me learn how to work well and even succeed with my diagnosis.  Hope this gives you a little better understanding of your neurodiverse peer.

Citations:

1. CDC. (2018). Symptoms and diagnosis of ADHD. Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/adhd/diagnosis.html
2. ‌2010 ADA regulations. (2010). Ada.gov. https://www.ada.gov/2010_regs.html
3. CDC. (2021, September 23). What Is ADHD? Centers for Disease Control and Prevention; CDC. https://www.cdc.gov/ncbddd/adhd/facts.html

By Yamila García

My perception of the world differs greatly from that of neurotypicals. While textures are irrelevant to many people, they are of the utmost importance to me. Certain textures help me connect with the present moment, focus on my activities, or even provide comfort. On the other hand, certain textures can stress me out, make me nervous, or even cause me pain. I experience textures with my entire body and mind, almost as if I become a part of them.

Many external stimuli can radically change how I feel. One of them, perhaps the most relevant for me, is water. Whether from a pool or from the ocean, for me water is comfort and peace. The water does not make sudden movements, loud and changing sounds, or sudden changes in temperature. It doesn’t introduce any additional external stimuli. Instead, it remains quiet, and peaceful, and allows me to flow with it. In the water, I can let my heart rate slow down, free my mind from worries, discomforts, and pains. It feels like being in a shelter where I have complete control of the situation, and nothing can disturb me.

However, there are other stimuli from different textures that cause me pain and overwhelm. The sound of a nail clipper, someone touching rough wood, many types of wool, the rubbing of clothing labels, and even Styrofoam cause me great discomfort. They upset me, hurt me, and sometimes make me want to escape the situation as quickly as possible. Some textures make my skin crawl, cause pain in my teeth, and make my eyes fill with tears, similar to the sensation of eating something highly acidic. Many of these textures also give me an electric feeling throughout my body, and they do not let me function normally. I have learned how to hide it, but I cannot make these textures feel comfortable to me.

Many neurodivergent individuals perceive the world in vastly different ways from others. This has nothing to do with seeking attention, justifying our actions, or being spoiled. However, our needs are often misunderstood. Our bodies and minds simply process stimuli in different ways, making some experiences more pleasant and others more uncomfortable. We don’t all have to feel or think the same in order to empathize with each other. It’s not necessary for everyone to fully understand how someone else perceives the world. However, we can all ask one another how to accommodate and support each other, or how to avoid causing discomfort.